Frank’s Story

Frank Mongeillo is a 48-year-old resident of Bucks County, PA. He is married to Marilyn and the father of six children: Ilyssa, Eric, Alexis, Samantha and Zack & Zoe. In October of 2015, Frank received devastating news and was diagnosed with ALS, otherwise known as Lou Gehrig’s disease. Worse yet, just five months after diagnosis – he can barely walk.As you may already know, it takes the FDA a significant amount of time to approve lifesaving drugs in order for pharmaceutical companies to commercially produce and distribute them to the public. Unfortunately, the average life expectancy for ALS is 2 – 5 years, with 50% living only for 3 years. Time is paramount. Frank pleads with you to cosponsor and support The Right to Try Act (H.R. 3012), The RESULT Act (S. 2388) and The REGROW Act (S. 2689, H.R. 4762) to give him and others the opportunity try a drug that might save their
lives. Help make it a possibility for Frank to walk his daughters down the aisle at their weddings – albeit in a wheelchair. Frank has a fatal disease with no cure and he will die – he doesn’t need the FDA to be concerned with his “safety”.
Contact Frank at
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“I have ALS and demand “The Right to Try” a drug in an FDA approved clinical trial that might save my life. I DON’T need the FDA to “protect” me from DEATH!”